Showing posts with label Canada. Show all posts

Happy Canada Day, Eh!


Canada flag photo by Harold L Doherty, very happy to be a Canadian,  
living in Canada, despite the lack of progress on the national autism front  

Today is Canada Day and I am very happy to be a Canadian living here in Canada.   We can still enjoy living in one of the world's freest countries in the world.  I am happy and thankful that Canada is my home. I am thankful for our freedoms, our beautiful natural environment and our national health care system that generally takes  good care of all Canadians not just those who can afford the very best care. 

Not much positive though can be said on our national autism front, a point that was reinforced by the death this week of former Fredericton MP, national autism champion and all aground great guy Andy Scott.  Andy did succeed in getting autism on the national agenda with his private member's motion M-172 and tried to follow up to push the Harper government to action. Our Prime Minister and his submissive federal health bureaucracy though have done absolutely nothing to advance the cause of Canadians with autism, particularly those with severe autism disorders ... Canadians like my youngest son.   

Notwithstanding lack of autism progress nationally though events of the past year have brought home to me all too forcefully that I am very lucky to be living in this wonderful Canada. When I could not breathe while waiting in an after hours clinic I received immediate care, was sent by ambulance to the emergency clinic of the local hospital and received acute care attention for a week at minimal expense.  When Conor suffered grand mal seizures and an adverse drug reaction he received care for two weeks at the same hospital including 6 days in the intensive care unit where he received the medical attention that saved his life.

My family and I are fortunate to live in Canada even without national level autism effort. 

I will continue to fight on the national autism front with wonderful autism advocates like the members of Medicare for Autism Now! 

In the meantime I wish everyone a very happy Canada Day, eh!

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Canada's World Autism Awareness Day Act: Great Preamble, Zero Action


On November 1, 2012 Canada passed An Act respecting World Autism Awareness Day an Act with a great preamble which provides for absolutely no action to ensure that effective evidence based early intervention for autism would be provided to all Canadian families affected by autism spectrum disorders.  

Talk, and rhetoric, is cheap.  Intervention is not. Failure to provide intervention and services is not cheap.   The human and financial costs of failing to take effective autism action continue to rise across Canada. 
60-61 ELIZABETH II

——————
CHAPTER 21
An Act respecting World Autism Awareness Day
[Assented to 1st November, 2012]
Whereas autism spectrum disorders affect a significant number of families in Canada;
Whereas Canada has a health care system and social safety net to prevent illness and serve citizens;
Whereas Canadian families affected by autism spectrum disorders have unequal access to services across the country;
Whereas worldwide the number of diagnoses of autism spectrum disorders is growing;
Whereas a greater awareness of the importance of early diagnosis and treatment for people with autism is required to engage more Canadians in helping their fellow citizens;
Whereas early intervention in the treatment of autism spectrum disorders can have promising results and help people engage with and contribute to society;
Whereas there is no known cause or cure for autism spectrum disorders;
Whereas 192 United Nations representatives agreed that World Autism Awareness Day would draw the attention of people across the globe to this neurological disorder that is affecting an increasing number of families;
Whereas in 2007 the United Nations General Assembly designated April 2, from 2008 on, as World Autism Awareness Day;
Whereas Canada is a signatory to the United Nations Convention on the Rights of the Child and the United Nations Convention on the Rights of Persons with Disabilities, which maintain that children with disabilities should enjoy a full and decent life in conditions that ensure dignity, promote self-reliance and facilitate their active participation in the community, while also enjoying all human rights and fundamental freedoms on an equal basis with other children;
And whereas Canada is a member of the United Nations and supports the work of this vital international organization;

Now, therefore, Her Majesty, by and with the advice and consent of the Senate and House of Commons of Canada, enacts as follows:

SHORT TITLE
Short title
1. This Act may be cited as the World Autism Awareness Day Act.

WORLD AUTISM AWARENESS DAY
World Autism Awareness Day
2. Throughout Canada, in each and every year, the second day of April shall be known as “World Autism Awareness Day”.
Published under authority of the Senate of Canada

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Heartless Canada Does It Again - Rejecting Another Immigrant Family Because of Son with Autism

Image by Kaz Novak, The Hamilton Spectator

An immigrant South Korean family, Sungsoo Kim, wife Sunmi Kim, daughter Lisa and son Taehoon, have been living in Canada for the past 9 years. A permanent residency application has been rejected  by Canadian officials because the 12 year old son   is autistic.  He  received the autism diagnosis several years ago but after he and his father, Sungsoo Kim,  had arrived in Canada.   

Change is difficult, very difficult, for many people with autism disorders.  For my severely autistic son slight changes in his daily routines and expectations can result in serious problems.  I can not imagine the harmful impact on this 12 year old autistic boy,  to be sent to another country now, after growing up in Canada over the past 9 years.  He has South Korean heritage, a Korean name and family but this boy after spending 9 of his 12 years in Canada IS Canadian.  

I understand the costs argument but it is still heartless for Canada to send this autistic boy to live in  a country he does not know, absolutely heartless.   If and when harm comes to this boy from this decision Canada must bear a major part of the responsibility.  

I am generally very, very proud to be Canadian but I am not proud of the way we treat good people who have chosen to live among us and become part of Canada because a child is diagnosed after arrival with an autism disorder. Woe, Canada!

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Robocall Misdirection Campaigns Are A Threat To Canadian Democracy



Canadian Flag, Nashwaaksis, Fredericton, NB
Photo by Harold L Doherty

Robocall misdirection campaigns are a threat to Canadian Democracy.  Please email your Member of Parliament and ask him or her to take all necessary steps to investigate and prevent future assaults on our democratic freedom. The federal government web site linked below will provide your MP email address by entering your postal code. I have also attached below, as an example, the letter I have just emailed to the MP for Fredericton where I live.  This is serious.


Find Your Member of Parliament Email Address

...................................................................................................................................

March 1, 2012

ASHFIELD, The Hon. Keith, P.C. 

Dear Mr. Ashfield

I have the privilege of living in the Nashwaaksis area of the Fredericton riding which you represent in the House of Commons.   I enjoy the many advantages that accrue simply by being a citizen of Canada, the most fundamental of which is our truly democratic system of government.  Our democracy is more than a privilege, more than a right, even more than a set of Constitutional principles.  It is who we are as Canadians.  The recent news that an organized campaign of  misdirection, of "robocalls",  by which many Canadians were intentionally sent to the wrong polling station depriving some of the opportunity  to vote in the last federal election, the "robocall" campaign,   is the most serious threat to Canadian democracy that I have ever seen.

I hope that you, as our Fredericton Member of Parliament, and  a member of the current government are taking seriously this threat to Canadian democracy. This is not about a particular political party or the political fortunes of individual political candidates.  This is about our democratic values and ultimately about whether we choose to live as free people. 

I ask that you:

1)  take all necessary steps to ensure that our federal government holds a judicial inquiry into the "robocall" campaign, 
2)  examine any potential harm to Canadian democracy that has result from the "robocall" campaign, 
3)  take steps, including passing appropriate legislation to quash future such threats to Canadian democracy;
4)  to punish all those responsible for the recently reported "robocall" campaign.

Respectfully,

Harold L Doherty

Fredericton, New Brunswick, E3A 1T1

cc. Citizens of Canada

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Autism Woe Canada: From Coast to Coast, No One Stands On Guard for Canadians with Autism Disorders


Two news reports show all too clearly that no one stands on guard for autistic children, youth and adults in Canada:

EDMONTON — A 51-year-old Edmonton man has been sentenced to seven years in prison for abuse and neglect of his teenage autistic son that left him looking like a "concentration camp victim." Vancouver Sun, Postmedia News, October 18, 2011 

Leave the Wild Rose province of Alberta and head to Canada's Ocean Playground in Nova Scotia and things don't get much better for Canadians with autism disorders.

"The provincial government has suspended Braemore's licence and replaced its executive director. The Cape Breton District Health Authority's board of directors is now acting as the interim board for the home.

The review was ordered by the province's Department of Community Services in February after officials found that an autistic resident of Braemore was locked inside a constantly lit room for 15 days last fall.

Minister says she feels 'absolutely terrible'

At the time, Community Services Minister Denise Peterson-Rafuse said the review was needed after her department concluded the 20-year-old man, who was allowed out occasionally for exercise and meals, sometimes urinated in the room when he couldn't leave to use a bathroom. The home's executive director, Debra MacPherson, later apologized.

Peterson-Rafuse, who was in Sydney on Tuesday to meet with the interim board, said she was taken aback by the report's findings.

"I accept the responsibility as minister to say that we could have done better too," she said in an interview."  CBC News, October 28, 2011"

A father in Alberta doesn't see what the fuss is all about over his failure to provide a humane level of care for his autistic son.  In Nova Scotia a government Minister is "taken aback" and, golly gee whiz,  she is just all shocked and surprised to see that a group home which is supposed to care for its residents didn't care at all and put adult squabbles and interests ahead of the dignity and well being of an autistic resident. 

Other Canadian provinces are no better.  Here in New Brunswick we have twiddled our thumbs and stuck stubbornly with an adult care system that does not provide safety, security and a dignified life for its autistic residents.  Adults who   suffer from severe autism disorders are sentenced to spend their lives in a psychiatric hospital. No one, including an Ombudsman's Office that has done little to help autistic children and adults in New Brunswick, will do anything to provide a decent life for the autistic adults in the care of the government once their parents succumb to old age and death. 

Our Supreme Court of Canada reversed decisions by a British Columbia trial judge and three BC Court of Appeal justices and put deference to government decision makers ahead of the best interests of autistic children in the Auton Case. Our federal governments under both Liberal and Conservative Prime Ministers have done nothing to provide Canadians with a Real National Autism Strategy.  

A Real National Autism Strategy is needed to ensure that regardless of where autistic Canadians live in this country they will be able to live in decent, humane conditions.  If we can't we should stop parading around the world, with a holier than thou attitude,  lecturing others about the way they treat their citizens.

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Jack Layton: Canada, and Canadian Families with Autistic Children, Have Lost A Strong, Compassionate Voice


Photograph by Fred Greenslade, Reuters


There will be many words spoken to express the great loss that Canadians feel on hearing of the passing of Jack Layton.  His positive, feisty, spirit won the hearts of many Canadians in the last election but he has long been a champion of great causes from the homeless to the environment.

Jack Layton was also aware of the challenges facing Canadians with autism and the need for the federal government to address those challenges. The Medicare for Autism Now! organization had obtained the following statement from Jack Layton as leader of the NDP which I had posted on September 17, 2008:


"Jack's Response on Autism


First, both NDP MP Peter Stoffer and myself have challenged the federal government for not providing funding in its last budget to help families with autistic children. I fully recognize that families with autistic children are in crying need of support and they are very disappointed that the Conservative government has ignored their needs in their budget spending.
On the matter of voting, in the April 3, 2006 to September 14 ,2007 session of parliament MP Shawn Murphy introduced his private members legislation Bill C-304, An Act to provide for the development of a national strategy for the treatment of autism and to amend the Canada Health Act. C-304 received first reading on May 17, 2006 but unfortunately it did not make it to third reading or a final vote because it died when the Harper government chose to prorogue that Parliament. I am also aware that on March 29, 2007, the Standing Senate Committee on Social Affairs issued a report on the Funding of Treatment for Autism titled:" Pay Now or Pay Later: Autism Families in Crisis" in which they recommended that the federal government demonstrate some leadership in the autism file by collaborating with the provinces to create a National Autism Strategy and address the funding of treatment. However, this report was not put before parliament for a vote.

New Democrats recognize that providing support for families with Autistic children has to be a bigger priority for the federal government than another corporate tax cut. That is why Peter Stoffer has introduced Private Members' Bills, C-211, An Act to amend the Canada Health Act (Autism Spectrum Disorder) to "ensure that the cost of Applied Behavioural Analysis ( ABA) and Intensive Behavioural Intervention (IBI) for autistic persons is covered by the health care Insurance plan of every province" and C -212, An Act respecting a Canadian Autism Day. ' The federal NDP is proud of Mr Stoffer's efforts to help put the needs of Autistic children on the political map."
Goodbye Jack.

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Maeng Family and Son with Autism Will Not be Deported from Canada!

 


VIKTOR PIVOVAROV/TIMES & TRANSCRIPT

The deportation order for the Maeng family of Moncton New Brunswick, Canada has been rescinded.  The family is no longer facing deportation because of their son's autism and epilepsy. The federal government rescinded the order after the Province of New Brunswick confirmed confirmed it will cover the health costs associated with the family's autistic son Sung-Joo Maeng 15. 

It feels good to be a New Brunswicker.  It feels good, once again, to be Canadian.  We have done the right thing by these good people. We have done the right thing for Sung-Joo Maeng.

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Woe Canada! More Canadian Shame as South Korean Family In Moncton Forced to Leave Canada Because of Son's Autism and Epilepsy


VIKTOR PIVOVAROV/TIMES & TRANSCRIPT

Canada's shameful and dishonorable conduct towards families and children with autism and other disabilities continues with the forced expulsion of a South Korean family because one of their son's suffers from autism and eplipsy.  The family operates a business in downtown Moncton New Brunswick and the oldest son has, as reported in the Times & Transcript, graduated with honors and has gone on to Dalhousie University where he studies science and hopes to become a dentist:

"They came to Canada to seek a better life for their children, but now they're being told to leave because their youngest son's illness costs too much. They came to Canada to seek a better life for their children, but now they're being told to leave because their youngest son's illness costs too much. The Maeng family from South Korea moved to Moncton in 2003 and within a few years set up a business, The Main Stop Oriental Market on West Main Street. They care for their youngest boy, Sung-Joo, 15, who has been diagnosed with autism and epilepsy, while their older son, Jung-Joo, 19, has worked his way through school, graduating with honours from Harrison Trimble High School last year before moving on to Dalhousie University in Halifax.

Tae-Shik Maeng and mother Hee-Eun Jang, received a letter informing them that their family would have to leave Canada by June 30. The family's application to Citizenship and Immigration Canada (CIC) to extend their temporary resident permit (worker and student) was denied due to the medical and education expenses of Sung-Joo"


Shame on us Canada. 

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Canadian Autism Shame: Canada Bars Autistic Teen From Permanent Resident Status


Canada has, to its shame and dishonor,  refused to include evidence based effective treatment for autism in the universal Medicare, our public national health care scheme,  that it offers to all Canadians thereby excluding  1 in 110 autistic Canadian children from receiving a fundamental benefit of our society.   Now it has extended that shameful treatment to autistic citizens of other nations, and even some of his family members, who would like to visit and reside in Canada.  

As Hugh Adami reports in the Ottawa Citizen:

"What Canadian immigration has done to an English teenager and his parents is cruel, embarrassing and hypocritical. The federal government has barred 17-year-old Lewis Crowe, who lives with his mother in England, from living in Canada because he has autism. Furthermore, he cannot visit the country without the permission of the immigration department. Stranger still is his father and stepmother, Robert and Pauline Crowe, are "inadmissible" as permanent residents because of Lewis's disability."

As a Canadian I am proud of my country which I believe is the best country on earth in which to live.  As the father of a teen aged son with severe Autistic Disorder though I believe that Canada has behaved shamefully in treating autistic Canadians as second class citizens by excluding Autism treatment from inclusion in Medicare. Now Canada has extended that shameful treatment to autistic persons and their families from other countries who would like to visit and reside in our otherwise wonderful country.  
Shame Canada, shame on us. 

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