If you believe IACC Neurodiversity advocates  present and past,   Ari Ne'eman and Matthew Carey,  autism is not something that should be cured.  You won't see much about the harsher aspects of life with autism disorders if you read their writings. In their view autism is nothing more than a different way of thinking, not a ...  disorder ... or group of challenging symptoms for which cures are needed.

No, the enlightened  Neurodiversity thinkers who are selected to represent the mythical "autism community" at the IACC see autism in the image of the members of the ASAN Board of Directors, researchers who work with Dr. Laurent Mottron or successful entrepreneurs.  For them, and other ND True Believers,  autism's greatest horror occurs on those rare occasions when a media outlet like Slate presents a perspective of a parent whose child presents with autism, intellectual disability and seizures, to say nothing of serious self injurious behavior or unintended aggression toward family and others who actually care for them.

I was surprised today to see CNN present a video of a family using marijuana to alleviate their son's very serious self injury.  Below is the video as shown on KPTV 12 Portland, Oregon  showing some painful realities from the harsher, severe end of the autism spectrum, far away from the irrational ideology of the Neurodiversity advocates who misrepresent autism to the world:

Following is a video From Kim Oakley a gutsy, honest mother of a severely autistic son with epilepsy and author of the blog Autism, Epilepsy and Self-Injurious Behavior, also much different from the high functioning autism of  media stars,  academics and ASAN corporate directors:

The Interagency Autism Co-ordinating Committee (IACC) plays an important role in autism research and understanding.  It is unfortunate that sitting as a public member of the IACC is lbrb blogger Matthew J. Carey,  a member of the Neurodiversity movement which, at its core (1) portrays autism as a different way of thinking  not a disorder or disability and (2) belittles efforts to seek cures for autism. His official bio posted on the IACC web site emphasizes his considerable background as an industrial researcher and his deep commitment to "communicating the importance of getting the science right for autism".  The bio is very specific about his many accomplishments in  industrial research. Although it does describe him as a blogger the bio makes no mention of  Matthew J. Carey, Ph. D.'s anti-cure, autism is a strength Neurodiversity ideological biases:

TPGA guru Shannon Des Roches Rosa (SDDR) is aghast and angry because Slate.com has dared publish "Is the Neurodiversity (ND)  Movement Misrepresenting Autism?", a gentle critique by autism parent Amy S.F. Lutz, of the harmful, irrational Neurodiversity ideology embraced by the leaders of the ironically named "Thinking" Person's Guide to Autism.   Self labelled as a guide for "Thinking" Persons the TPGA is harshly critical of anyone, especially autism parents, who disagree  with them; anyone who portrays autism as a disorder or as a group of disorders, deficits or symptoms.  In the Neurodiversity world of the TPGA  the autism and related symptoms of a child must be accepted as blessings, and attempts to treat and cure those symptoms, deficits or disorders rejected, by THINKING persons.  That is the true autism path according to Neurodiversity, that is the true autism path according to SDDR and the "Thinking" Person's Guide to Autism.  Woe to any parent or publication that dares disagree with the self appointed arbiters of rational autism thought at the TPGA.

In a quick and angry response to the Slate article  Des Roches Rosa was, to her credit, open and honest about WHY she was upset.  SDRR. as reflected in the title of her response, was upset because the author of the article questioned Neurodiversity ideology: Why Did Amy S.F. Lutz Attack the Neurodiversity Movement?.  The alleged attack consists of pointing out the fact that very high functioning self advocates who do not required medical treatment, or treatment of any kind, misrepresent the harsher realities of low functioning persons with autism disorders. She points out correctly that such misrepresentation, especially coupled with the DSM5 substitution of Asperger's for autism, will probably result in  ever fewer autism treatment advances.  Ultimately this misrepresentation and misdirection of resources will probably result in the very limited progress to date in autism treatment research being slowed even more ... to the detriment of the low functioning autistic persons most in need of progress in autism research.

I was surprised to see that a preliminary study of stem cell treatment of autism disorders is proceeding with FDA approval in the United States.  Stem Cells as possible treatments for autism have been mentioned for some time but have been subjected to disparaging commentary for several reasons including the usual anti cure attacks from Neurodiversity self interest groups. To see a preliminary study actually examining a possible source of treatment and cure for autism disorders is startling.  To see such a preliminary study receive FDA approval and thereby receive some protection from the anti cure autism extremists and self anointed protectors of the one true science at Respectful Insolence and similar sites is almost shocking.

Philly.com carries a HealthDay article by Mary Brophy Marcus, Could Stem Cells Treat Autism? Newly Approved Study May Tell  which indicates that: 

"Thirty children with the disorder, aged 2 to 7, will receive injections of their own stem cells from umbilical cord blood banked by their parents after their births. All of the cord blood comes from the Cord Blood Registry, the world's largest stem cell bank. Scientists at Sutter Neuroscience Institute, in Sacramento, Calif., said the placebo-controlled study will evaluate whether the stem cell therapy helps improve language and behavior in the youngsters."

The article  is careful not to over hype the study emphasizing that although it is a well designed study it is still a preliminary study which will in effect help decide whether further such studies concerning stem cell treatment of autism are warranted and that it is very early in this process.  The article also points out that there are mixed views  with some researchers being skeptical about the value of stem cells in treating autism. 

The cautions expressed are  helpful to my mind.  Those who oppose research that might lead to knowledge of autism causation, or to treatments and cures will seize on any excuse to attack and derail such research.  The disciplined, professional approach will help ward off such attacks.  In the end we should ALL want proper procedures, proper protocols to be followed to ensure that ANY results, positive, negative or neutral to anyone's perspective can be relied upon.

Personally, I am very happy that there is actual  research being done, in proper fashion, by credible professionals, under appropriate authorization aimed at finding treatments and cures for autism disorders. After years of  pointless, meandering,  autism research it is encouraging to see researchers who still live in the real world, who do not view parents as the enemy, and who realize that despite the protests of a few very high functioning persons  autism disorders are very debilitating, limiting and even dangerous for many who suffer from them.  Autism disorders require treatment as advocated by parents seeking treatment and cure for their children and for those who suffer from them and want treatment and cure for themselves.  Let the research be done and be done properly. 

"Autism as an identity, not a disease" features very high functioning university English professor Melanie Yergeau who serves on the board of directors of the Autistic Self-Advocacy Network, an organization composed of very high people on the autistic spectrum who promote Neurodiversity perspectives which present autism as a variation not a disorder. Ms Xu does not meaningfully present the other side of the argument by referring to the great number of persons with autism disorders, most diagnosed as children (unlike either Ms Yergeau or her founding ASAN member Ari Ne'eman whose "autism" symptoms were so mild as to escape attention until their college or adult years) for whom the challenges of autism disorders are much more serious than those faced by Ms Yergeau. 

Many children, like my son diagnosed 14 years ago at age 2, were diagnosed early because their symptoms were severe and obvious. Unlike Ms Yergeau or Mr. Ne'eman autism is very serious for most of these children and will include cognitive challenges, limited communication verbal or otherwise, self injurious behaviors and lives spent in residential care of one level or another. For Ms. Yergeau, Mr. Ne'eman and their fellow ASAN Board of Director members autism may be just an identity to be embraced. If it is not actually a disorder for them, if it does not actually limit their daily functioning or prevent them from becoming professors, corporate directors, media celebrities or otherwise impair their lives why then did they accept a medical disorder diagnosis of autism or Asperger's in the first place. 

Parents fighting to help their severely autistic children face many obstacles. One of the most obnoxious of such obstacles is the harmful ideology of ASAN Directors and other very high functioning autistic persons who feel the need to own the medical label which they embrace while telling the world it is not in fact a medical disorder. Not content to seek awareness of their specific high functioning autism realities they pretend to speak on behalf of others, including other peoples children, who are much more severely affected than they. They make public efforts to interfere with the efforts of parents seeking cure and treatment for their own severely autistic children. 

The Michigan Daily's benevolent portrayal of this harmful Neurodiversity ideology is shameful, irresponsible journalism.

Some self promoting, self proclaimed "geeks" are pushing a distorted view of autism disorders as being  the domain of different, even superior, thinkers.  Historical geniuses long dead are often cited as examples of "suspected" autistic thinkers. Of course, the self promoting ideologues do not go so far as to embrace possible evil "autistic thinkers".  Joe Scarborough was rightly criticized very recently for suggesting that an alleged mass murderer, whose name will not appear on this site, might be a person "on the autism scale".  Neurodiverisity autism "self advocates" were vehement in their criticism. Yet the same self promoting "autistics" will diagnose virtually every scientific, musical or artistic genius today, or long dead relics of history, as being or having been autistic.  Meanwhile those for whom autism is in fact a disorder, a disorder which limits their lives to institutional care in various forms, that inflicts bouts of serious, sometimes brutally serious self injury, those who wander to their demise, the many with autistic disorder who are intellectually disabled or generally lacking in cognitive development and understanding of the world are never mentioned by the self promoters of "aren't we smart" autism.

Yet another example of the misrepresentation of autism disorders as an alternative, superior way of thinking has been posted at the io9 web site under the title  How Autism is Changing the World for Everybody.  Admittedly io9 is not an online peer reviewed science journal.  It is a science fiction, futurism and fantasy oriented blog site.  That said the Changing the World article is breathless, even giddy, in its promotion of autism as superior thinking.  It features interviews with various neurodiversity promoters including online magazine writer and soon to be Penguin author Steve Silberman.  Neither Silberman nor the article's author, or anyone else referenced in the article,  mention that autism is in fact a disorder listed in the DSM and ICD manuals dealing with disorder.  No mention is made of the very severe challenges facing those with autism disorders.

I was fortunate, and my son Conor was fortunate, that not too long after his autism diagnosis I attended an autism parent meeting where I met a registered nurse named Dawn Bowie. Dawn's autistic son was a couple of years older than Conor. When I began expressing some of my doubts about early intervention, doubts inspired by reading Neurodiversity literature, Dawn Bowie responded as perhaps only a nurse can do. She looked me right in the eye and in a very firm tone said "You listen mister you get treatment for your son, if you can, as much as you can".

There weren't many autism treatment resources available in Fredericton 14 years ago when my son was diagnosed at the age of two. But I sought out the treatment that Dawn recommended and I became an advocate for autism services in New Brunswick along with Dawn Bowie and many other autism parents. As the parent of a now 16 year old son I don't know if he could have attended school all these years, or if he would still be living with us, if he had not received the ABA he has received and if we had not learned how to manage his behavior through our own efforts to apply ABA principles at home. 

Early effective ABA intervention for your autistic child. It's the best advice I received for my autistic son. Absolutely check with your child's treating professionals but I suspect you will receive the same advice ... get as much early ABA treatment for your autistic child as you can. It was the best autism advice this father of a severely autistic son ever received. 

My previous commentary on the irrationality of, and harm caused by, Neurodiversity follows. It includes references to an American Medical Association commentay in which Dr. Magaret Moon questions the ethics of parents refusing available effective ABA treatment for their autistic children, parents who have imbibed the anti-cure rhetoric.  My comment also includes an earlier reference to Dawn's advice ... the best autism advice I ever received. 

Each announcement of increased  rates of autism diagnoses (the past year saw the CDC revise its estimate from 1 in 110 to 1 in 88) brings the same, tired refrain about increases in autism: it ain't real babe.  The Neurodiversity ideologues recycle the explanations trotted out for each announced increased in autism rates: 1994 DSM diagnostic definition changes and increased awareness being the two most prominent. 

Dr. Tom Insel is known to everyone involved in autism issues as the head of the IACC, the Interagency Autism Coordinating Committee.  He can not be attacked as being an "anti-vaxxer" or as an emotional, hysterical parent of an autistic child.  Dr. Insel had this to say in a December 18, 2009 interview by David Kirby:

It fits Emily Willingham's Neurodiversity ideology to recycle the diagnostic change/substitution and increased awareness factors.  What we don't need is yet another recycling of these long understood factors which undoubtedly explain part of the increases in autism rates.  What we do need is a focused environmental research strategy as advocated for In A Research Strategy to Discover the Environmental Causes of Autism and Neurodevelopmental Disabilities, an editorial in a recent issue of Environmental Health Perspectives, authors Philip J. Landrigan, Luca Lambertini and Linda S. Birnbaum.

This is the video of my interview on Medicare for Autism Now! Since that interview a US Federal Court Judge has ordered Florida Medicaid to provide Medicaid coverage of ABA for autism. California has mandated insurers to provide ABA coverage for autism and the US federal government has done the same thing in respect of US federal government employees. Meanwhile back in Canada .... nothing ... or worse. 

The sham autism symposium held after a panic stricken Canadian government cancelled a real national autism symposium in order to screen out and prevent real autism activists from attending has resulted in absolutely no gains for autistic Canadians. Little progress has been made across Canada and in some provinces, like New Brunswick under the current administration, we are actually seeing gains slip away. 

We need a new generation of advocates to step forward and join the fight for autistic children and adults. We need YOU!

Last night there were no pictures taken but Mom and Dad were walking the trail around Killarney Lake on either side of Conor when he put his arms through each of ours and walked along  looking back and forth at Mom and Dad with a huge smile, even a bit of a giggle at times. Loads of affection for his Mom and Dad.  It is the Conor gift.

The pictures above have been posted on this blog site for some time.  The picture of Conor by himself is from one of his favorite spots ... Killarney Lake.  The other two show Conor's amazing smile which, by itself, is always a gift for Mom and Dad.    Despite Conor's type of autism, the actual disability/disorder type, he brings great joy to his Mom and Dad as he did last evening at Killarney Lake. His autism, unlike Ari Ne'eman's, is a disorder and his smile is not a gift brought courtesy of his autism disorder.  It is the Conor gift. 

Ariane Zurcher is a jeweler, author and mother of a child with autism.  Zurcher  though is tired of people talking about autism as though it were a disorder or group of disorders. In the AOL Huffington Post opinion piece The Depiction of Autism and Why It Matters Zurcher says she is tired of negative depictions of autism.  She criticizes those who do talk about the realities of autism disorders because ... well because in her view she has outgrown such views and so must we. No mention should be made of the deficits that led parents to seek medical advice in the first place, to find out what was wrong with their child.  No description should be made of the deficits that resulted in a medical diagnosis of autism in the first place.   Zurcher wants us all to talk about autism as though it were ... jewelry, pretty, sparkly jewelry.

The word disorder does not appear in Zurcher's opinion piece.  There is mention of deficits (without any description of those deficits) associated with autism but primarily for the purpose of chastising the media and anyone who uses negative imagery in talking about autism.   She does not describe in any detail the harsh realities facing those severely affected by autism disorders.