Showing posts with label Glenn Thibeault. Show all posts

Jaden Lake's Autism on the Hill Rally - Well Done Jaden!


Edmonton MP Mike Lake, whom I have met (at IMFAR 2012 in Toronto) and communicated with a few times about autism in Canada, have different perspectives on the proper role for Canada's national government in addressing Canada's autism crisis.  The government of Stephen Harper, of which Mike Lake is a member,  is not a strong supporter of Canada's national medicare system generally and has done nothing to advance in a meaningful way the National Autism Strategy advocated for by former and present opposition MP's Andy Scott,  Peter Stoffer, Shawn Murphy and Glenn Thibeault and by Senator Jim Munson.   I know though that Mike Lake is a dedicated father and a strong advocate for his 17 year old autistic son Jaden, who appears to have many similarities to my own son with autism of the same age.  I enjoy seeing Jaden in television and video appearances and was pleased to read the Ottawa Citizen article about the Autism on the Hill Rally and the pictures featuring Jaden Lake.

Thank you for advocating for autism awareness and services Jaden! Well Done!

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Glenn Thibeault's REAL National Autism Strategy



In the past 36 hours I have criticized CASDA's claims to be advocating for a National Autism Strategy and to be presenting a unified national autism voice.  Lawrie Mawlam of CASDA, a conscientious and courteous individual with whom I have had the privilege of talking in recent months,  has taken some objection to my criticism and I thank her for expressing her opinions so forthrightly.   I hope though that CASDA will consider the criticisms of their efforts before rejecting them defensively.  I also ask CASDA, and any one else purporting to advocate for a National Autism Strategy to consider and support the private members bills of Sudbury MP Glenn Thibeault. The two bills express a clear and coherent National Autism Strategy that would be great benefit to autistic Canadians and their families and that is consistent with the efforts by many Canadians seeking a REAL National Autism Strategy for many years before CASDA and its constituent elements began seeking a national approach to autism.

I recommend that CASDA, Conservative MP Mike Lake,  and all others seeking a real and meaningful national autism strategy support, and encourage their members of Parliament to support, Glenn Thibeault's private member autism bills as described on Mr. Thibeault's site:

"THIBEAULT RE-INTRODUCES AUTISM LEGISLATION


2011 06 15


OTTAWA – Today MP Glenn Thibeault (Sudbury) re-introduced two Private member`s Bills designed to assist individuals diagnosed with autism spectrum disorders.


The first Bill would amend the Canada Health Act to include Applied Behavioural Analysis (ABA) and Intensive Behavioural Intervention (IBI) as medically recognised treatments for individuals living with autism spectrum disorders.


The second would create a National Strategy for individuals living with autism spectrum disorders, therefore ensuring that these individuals would receive the highest level of care, regardless of which region of Canada they live in.


“Far too many Canadians and their families are coping with autism spectrum disorders without adequate support from any level of government” said Thibeault. “Together, these two Bills would ensure that all Canadians, irrespective of where they live, have access to the most appropriate forms of care and extended health services.”

“With negotiations between the provinces and federal governments on the Canada Health Accord starting in 2014, I am calling on the Government to implement the provisions of these bills to ensure that individuals suffering from autism spectrum disorders are properly covered by the Accord.”

Autism spectrum disorders are a spectrum of psychological conditions, including autism and Asperger’s syndrome, which are characterised by an impairment of social interaction, restrictive interests and repeated behaviours. Currently, around 1 in 200 Canadians – representing roughly 190,000 Canadians - are estimated to have autism spectrum disorders. Incidence rates have been on the rise over the past decade, with the prevalence rate in children estimated to be 1 in 165.

-30-

For further information, please contact:

Alex Bushell, Parliamentary Assistant (Glenn Thibeault): 613-996-8962 or glenn.thibeault.a2@parl.gc.ca"

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CASDA National Autism Strategy Is Not A REAL National Autism Strategy: It Does Not Help Canadian Autistic Children and Adults



In looking at the National Autism Strategy information from a CASDA (Canadian Autism Spectrum Disorders Alliance) conference held in Ottawa on June 8 2011, and which I have posted following this comment,  I see that there is the suggestion for expansion of tax relief for autism families. That is certainly a specific, concrete step that will help some families with autistic children. Beyond that though I don't, with all due respect, see anything being proposed to assist autistic children, regardless of where they live in Canada, to receive evidence based effective early intervention, yes that still means ABA, a real education and for the many who will require it, decent, autism specific residential care and treatment as adults.

Early autism intervention across Canada resulted from a wave of focused determined parents advocacy which began over a decade ago. It did not result from conferences of persons building careers in politics or charitable bureacracies or attending subsidized conferences in Banff or Ottawa. 

I recommend that this organization stop pretending and start getting serious about helping with early intervention, education, adult residential care and treatment for autistic Canadians. Sorry I if sound harsh but these types of conferences, with their timid agendas,  have accomplished nothing over the past 10 years. Pretending to help is worse than doing nothing at all. It creates the illusion that something is being done when that is not the case.

Conservative government MP Mike Lake, to his credit, did provide  links to parliamentary sites if you are interested in following autism bills introduced by Sudbury NDP MP Glenn Thibeault who has been a determined advocate for a real National Autism Strategy for several years.  My final comment is to recommend to Mr. Lake and other attendees at the CASDA conferences to fight for a real National Autism Stategy as Mr. Thibeault has done along with fellow NDP member Peter Stoffer and former Liberal MP Shawn Murphy.

"In 2007, Autism Canada spearheaded the Canadian Autism Spectrum Disorders Alliance (CASDA) and today sits on the Leadership Committee. On June 8, 2011, Laurie Mawlam, the Executive Director at Autism Canada, was in Ottawa with the others on the CASDA Leadership Committee advocating for a National Autism Strategy. Please find below the notes from that meeting, including the individuals the Leadership Committee met with and a synopsis of their conversations.
  
Connor Robinson, Canada Revenue Agency
  • Broadening the interpretation of existing categories of eligible expenses under the Medical Expenses Tax Credit to include more expenses often faced by families with a child with an Autism Spectrum Disorder
  • Adding Autism Spectrum Disorder-related expenses to the list if eligible expenses under the Medical Expenses Tax Credit
  • Clarifying the rules and procedures of the audit process                    
Lisa Belzak, Epidemiologist, Public Health Agency of Canada 
  • The development and design of a National Surveillance System for Developmental Disorders, including Autism Spectrum Disorders
  • The creation of a nomination committee to create an advisory committee for the National Surveillance System
  • The creation of an advisory committee for the National Surveillance System
Nathalie Gendron, Assistant Director, Institute of Neurosciences, Mental Health and Addiction, Canadian Institute of Health Research 
  • The current levels of funding for research in Autism Spectrum Disorders
  • New developments that are in the works that should be made public shortly
The Honourable Jim Munson, Senator, Ottawa-Rideau Canal 
  • Raising awareness of Autism Spectrum Disorders among Senators and Members of Parliament
  • The reintroduction of Senator Munson's bill honouring Autism Awareness Day 
The Honourable Mike Lake, Member of Parliament, Edmonton-Mill Woods-Beaumont 
  • Reviewed outcome from meetings of the day
  • Discussed Mike playing a role in reaching out to other MPs that have a family member with an ASD, to increase the base of support for a federal ASD agenda
  • Reminder from Mike that the following website permits us to follow the progress of bills related to ASD -www.parl.gc.ca
    • There are presently two bills dealing with Autism Spectrum Disorder, which are being introduced by the Member of Parliament for Sudbury, Glenn Thibeault (NDP).
    • Bill C-218: http://www.parl.gc.ca/LegisInfo/BillDetails.aspx?Language=E&Mode=1&billId=5079448
  •      Bill C-219: http://www.parl.gc.ca/LegisInfo/BillDetails.aspx?Language=E&Mode=1&billId=5080253

    These meetings were an opportunity for CASDA to reinforce the importance of action on the federal level in the area of Autism Spectrum Disorders and share our vision that all Canadians with an Autism Spectrum Disorder have full and equal access to the resources that they require to achieve their full potential.

    Thank-you for joining CASDA to ensure that our vision becomes a reality. Our strong, collective voice for the Autism Spectrum Disorder community at the federal level is making a difference!


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Liberal and NDP Autism Advocates in Election 2011


Glenn Thibeault            Peter Stoffer           Ruby Dhalla           Brian Murphy

Although our federal government has done very little to help autistic Canadians receive effective evidence based early behavioural intervention, autism specific education and accommodation or decent residential care for autistic adults it is not for lack of trying by several members of parliament who are running again in Election 2011.   Peter Stoffer,  a Nova Scotia (Sackville-Eastern Shore) NDP candidate,  has been involved in national autism advocacy for many years and co-sponsored, with former Fredericton MP Andy Scott, a motion seeking to implement a national autism strategy.  Glenn Thibeault an NDP candidate from Sudbury Ontario also brought a private members motion in support of autism.  During debates in the House of Commons  both New Brunswick (Moncton)  Liberal candidate Brian Murphy and Ontario (Brampton-Springdale) Liberal candidate Ruby Dhalla gave strong speeches on behalf of autistic Canadians. 

This autism dad and advocate hopes that all of these strong autism advocates are re-elected on May 2. 

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#elxn41 Autism Request

My #elxn41 autism request is  a request to the Canadian electorate.  Please listen to Senator, and long time autism advocate, Jim Munson  about the need for action on behalf of autistic Canadians who deserve better, who deserve national treatment standards. and who deserve effective treatment regardless of where they live in Canada.

Take action, during this election, to vote for a candidate who will support autistic children and adults in Canada by voting for a candidate who will support a bill to expressly and specifically include autism spectrum disorders, soon to be grouped together and  known, in the DSM5,  as Autistic Disorder, in the Canada Health Act or in a federal Act specifically dedicated toward dealing with Canada's national autism crisis.

As Senator Munson said in an Ottawa Citizen article, Autistic Canadians deserve better,  published on April 2, World Autism Awareness Day:

"In 2007, the Standing Senate Committee on Social Affairs, Science and Technology released a report titled "Pay Now or Pay Later -Autism Families in Crisis," a comprehensive study of autism issues. As a Senator who initiated the study and a member of that committee, I heard heartwrenching testimony from parents so desperate to get help for their autistic children.


Many had uprooted their lives and moved to places where care options were significantly better than what they could access in their own home province.


Two recommendations from the report that I consider most crucial are national standards for treatment and research, and a national strategy for equal treatment and services across the country. Courageous actions are now needed to deal with this emerging crisis.


It isn't much to ask that a federal minister sit down with provincial counterparts and representatives from autism organizations to devise a better way to operate. It is time for federal politicians to take a leadership role.


Such courage would rouse this nation and render much-needed comfort to the thousands of Canadians affected by autism.

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