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IACC Neurodiversity Member Matt Carey Single-Handedly Reduces Intellectually Disabled To A "Small Segment of the Autistic Population"



The Interagency Autism Co-ordinating Committee (IACC) plays an important role in autism research and understanding.  It is unfortunate that sitting as a public member of the IACC is lbrb blogger Matthew J. Carey,  a member of the Neurodiversity movement which, at its core (1) portrays autism as a different way of thinking  not a disorder or disability and (2) belittles efforts to seek cures for autism. His official bio posted on the IACC web site emphasizes his considerable background as an industrial researcher and his deep commitment to "communicating the importance of getting the science right for autism".  The bio is very specific about his many accomplishments in  industrial research. Although it does describe him as a blogger the bio makes no mention of  Matthew J. Carey, Ph. D.'s anti-cure, autism is a strength Neurodiversity ideological biases:

Matthew J. Carey, Ph.D.

Parent and Autism Blogger

Dr. Matt Carey joined the IACC as a public member in 2012. Dr. Carey is the father of a young child with multiple disabilities, including autism spectrum disorder, and is a frequent contributor to the Left Brain/Right Brain blog and other autism blogs. His writing focuses on reviewing current autism research in an understandable way for the public and he is deeply committed to communicating the importance of getting the science right for autism. He is also interested in analyzing trends in health and education public data sets; his critique of "Timing of Increased Autistic Disorder Cumulative Incidence" was published in the journal Environmental Science &  Technology and his analysis of parents' academic expectations for their children with ASD, based on the 2007 National Household Education Survey, was presented at a poster session during the 2011 International Meeting For Autism Research (IMFAR). Dr. Carey is an active industrial researcher in computer hardware whose current research interests include magnetic thin films, spintronics, and magnetic nanostructures. His work has been published in high-impact journals such as Nature Materials, Physical Review Letters, and Applied Physics Letters and he currently holds 106 patents or published patent applications. He received his B.S. in physics from Harvey Mudd College, his M.S. in Physics from the University of Illinois, Urbana-Champaign and his Ph.D. in Physics from the University of California, San Diego.

In a recent comment  at his lbrb blog criticizing the Slate article Is the Neurodiversity (ND)  Movement Misrepresenting Autism?", and its  author Amy S.F. Lutz, Carey singles in on her comments about autism and the intellectually disabled and in the process single-handedly reduces the numbers of persons with autism and intellectual disability:

 "The fact of the matter is that intellectual disability, especially those unable to read, write and/or speak, is a small segment of the autistic population. And as we learn more about autism, this fraction is an ever shrinking percentage of the identified autism population."

The fact of the matter is that,  according to CDC autism expert Dr. Marshalynn Yeargin-Allsopp, persons with autism once constituted the "vast majority" of persons with autism ... until the APA expanded autism by grouping it with PDD-NOS and Asperger's in the DSM-IV group of pervasive developmental disorders now known as the "autism spectrum" reducing the intellectual disabled to approximately 40% of the entire autism spectrum.  

The fact of the matter is that, according to  CDC surveys in 2004 and 2006 those with intellectual disability still constituted 41-44%  of the entire autism spectrum.  

The fact of the matter is that in Autism and intellectual disability: a study of prevalence on a sample of the Italian population, La Malfa G, Lassi S, Bertelli M, Salvini R, Placidi GF, the authors reported that their study confirmed the relationship between ID and autism and suggested a new approach in the study of ID in order to elaborate a new integrated model for people with ID and autism.

The fact of the matter is that IACC member Matthew J. Carey,  Ph. D., (Physics), accomplished industrial researcher, provided no sources or authorities for his claim that intellectual disability is a small segment of the autistic population.  

Of course in fairness to Matthew J. Carey, Ph. D., industrial researcher, his Neurodiversity beliefs probably didn't  allow his purported commitment to "communicating the importance of getting the science right for autism" to function properly.   

Amy F.H. Lutz is of the view, as am I, that Neurodiversity misrepresents autism.  IACC member Matthew J. Carey's attempts to single-handedly reduce the numbers of intellectually disabled is a very clear example of such misrepresentation.

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Medical Model of Autism Embraced by Neurodiversity Blogger Kev Leitch?


- Comment by Neurodiversity Blogger Kev Leitch of LBRB on the recent paper indicating that children have been compensated for what, based on an analysis of the symptoms, appear to have been autism disorders.

Neurodiversity, to the extent that it has any meaning at all, opposes the medical model of behavioral and intellectual disorders.  Kev Leitch of LBRB has been a prominent Neurodiversity autism blogger.  It came as a pleasant surprise to me to see that Kev does in fact accept that autism is a medical disorder despite his ND leanings.  Kev has always been solidly in the autism is a gift ND Camp ( Or as Estee Klar argues autism is a joy):

To cure what? Good question. Some believe that autism and its attendant comorbidities are interchangeable. That constipation and a different way of looking at things are the same thing. That dyspraxia and a lack of imaginative ability are the same thing. Others believe that the two things are quite separate. That the comorbidities that are attendant with autism in some people cannot be used to define autism. That the condition of being autistic bequeaths gifts as well as troubles (and it does bequeath troubles, lets not pretend it doesn't) and that keeping the troubles is a small price to pay for keeping the gifts.
Kevin Leitch"


It is difficult for me to rationalize the view that autism is a gift with the concept that autism is a medical disorder for which one must receive a medical diagnosis  before being considered autistic.  Admittedly I lack Kev's intellectual flexibility.  He might well be able to reconcile these diametrically opposed concepts but I can't do that.  I can't embrace two diametrically opposed concepts as both being true.  I have always viewed Neurodiversity ideology as inherently irrational.  

If autism is a gift why does someone have a medical  diagnosis? People don't seek medical attention because they have a gift.  We sought medical attention for our son 14 years ago because, even at 15 months of age, it was clear that he was not developing ordinary speech for a child his age and was not even acknowledging our presence when we tried to play games like peek a boo with him.  We were not seeking an autism diagnosis for him, I did not even know what autism was.  We wanted to know if he had medical issues. Ultimately after observation and testing he was diagnosed with an autism disorder.   Our son is a gift. We enjoy our every minute with him, even the challenging times. But his autism disorder itself is not a gift. It is a medical disorder which limits very seriously his ability to enjoy an independent life or to understand the world in which we live.

I can not reconcile the concept of a medical disorder, obtained because of serious functional and developmental limitations, with the concept of a gift.  Perhaps ND ideologue Kev Leitch is finally moving away from his embrace of the contradictory mess known as  Neurodiversity.  Perhaps.

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