Showing posts with label Huffington Post. Show all posts

Autism Reality Check: Huffington Post Now Misrepresents Autism Disorders


It is 6:40 am (Atlantic) time here in Fredericton, New Brunswick, Canada. Conor, my 6 feet tall, 15 year old son with Autistic Disorder, is now relatively quiet after several hours of screaming and crying.  The noise was accompanied by periodic outbursts of head slapping. That is the reality of my son's autism.  For my son autism reality is not, as it is for Elaine Hall and the Huffington Post, a fine line between obsession and genius.

In Autism: Is It An 'Obsession' Or Just A Preferred Interest? Elaine Hall ponders from her perch on the Autism Is Beautiful Page of the Huffington Post what she considers to be the fine line between autism and genius and wonders whether the world would be a better place if all those ignorant, ill informed,  parents of autistic children were as enlightened as she is and would look for and promote their children's strengths instead of trying to force  learning upon them:

"Sometimes I wonder if there is a fine line between autism and certain kinds of genius. Or artistry. Think about it: Anyone who excels at something has to have spent countless hours each day perfecting their craft, art or gift. For instance, if the mother of a young, would-be juggler were to say, "It's inappropriate to toss little balls up and down," no one would ever have the joy of watching an accomplished juggler. Or, think of scientists who spend hours in their laboratories developing cures for all sorts of ills.

How great would it be if every child had mentors who saw a child's strengths as a way toward adult life. This is not a new concept! In "The Republic," Plato urges educators to view a child's early interests and play as serious business that helps prepare a child for adult work. He emphasizes that forced learning cannot remain in the soul. What if parents, educators and therapists saw a child's intense interests in a positive light. Perhaps Joel could become a paleontologist; Marcy could sing in local plays. We homeschool Neal. He is now learning all about bees. In fact, his school curriculum is built around his preferred interests in bees to learn math, science, language, history, etc. His world is expanded by all of us following his intense interests. Perhaps one day he will be a bee keeper or a honey manufacturer. Clearly, the world can benefit from people who are free to explore and enact their obsessions."

For many people with autism disorders living their lives dependent on the care of others, in one form of residential institution or another,  autism is not the "autism" of Elaine Hall and the Huffington Post. Autism Reality for the "vast majority" of those with the original autistic disorder diagnosis includes intellectual disability, it includes serious self injury For some with autistic disorder it includes injury to parents and caregivers who love them dearly.

Two years ago autism for Trudy Steuernagel was the last thing she experienced as she lay dying, soaked in her own blood, killed by her own 18 year old severely autistic son whom she loved dearly and who apparently lacked the mental capacity to understand what he had done to his mother. All autistic persons do not kill their family members or care givers but many have very serious issues, serious inability to function in the real world.  For many, many persons with autism disorders and those family and friends who love them autism disorders are much, much more than a fine line between obsession and genius. They are disorders and they are serious impediments to healthy, positive lives for many who suffer from them and those who care for them.

Arianna Huffington sold the Huffington Post for a huge payday.  The Huffington Post Autism Big News Page is now just another mainstream media page misrepresenting autism, portraying it as a pretty blessing and hiding the realities and challenges of those afflicted with autistic disorder and their families.  Arianna sold  her "Post" and has sold out those with autism disorders and their families. 

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The Huffington Post's Autism Big News Page Ain't What It Used To Be


When the Huffington Post merged with AOL there were some who wondered about the impact of the deal on the Huffington Post's positioning outside the news establishment. Emily Bell explored this concern at the UK's Guardian in AOL + Huffington Post = disaster? :

Huffington achieved a miracle for web publishing in 2005, by getting high-profile contributors to write for nothing, through a mixture of charm and brand association. One can imagine now, with the money for their labours residing with AOL, that bargain will abruptly come to an end.

Part of Huffington Post's success was its vibrance and its position outside the establishment. It has now not only joined an establishment, but joined one where most people feel about as close to the brand as they do to Walmart.

...

A rather troubling aspect of the whole episode has been the baffling message, repeated by Huffington in an editorial on the site today, that this merger is "1 + 1 = 11". One hopes that this does not mean, for the sake of the HuffPo staff and the AOL shareholders, that the deal is quite literally nonsense."

The Huffington Post has certainly changed with respect to its Autism Big News Page.  One of the most obvious changes is the assertion of content control by the elimination of the autism blogs directory at the bottom of the page.  Even this humble autism blog could be found in that directory on occasion. There was no apparent attempt to control the blogs that were featured in that directory with a variety of blog site perspectives  shown on a perpetually rotating basis. Now, unlike some other Big News Pages at the HP the rotating autism blogs directory is gone.  At the same time the content appears to have changed.  The days when a David Kirby and others could ask questions about  autism and vaccine safety appear to have disappeared.  Featured prominently near the top of the page is the recent IOM rehash of  studies ...  which has purportedly determined for all time that there is not, has never been, and can never be, forever and ever Amen,  any remotely possible association between autism and vaccines, vaccine schedules, vaccine ingredients, vulnerable population subgroups or vaccine ingredients including those those vaccines containing ingredients which cross the placenta and which are given to pregnant women.  Vaccine autism discussion is now officially dead at the Huff.

To its credit the Huff Autism Big News page still contains some articles about increasing autism rates but look for that to change as the AOL-HP managers ultimately realize that real increases in autism, by necessary implication, involve possible environmental factors.  Such factors could include anything in the air, water, or food supply that we consume. They could include toys and jewelry. They could even include ingredients of prescription drugs and ... things injected into pregnant women and young children.  When the realization that commercial interests could be implicated sinks in look for the autism prevalence studies to disappear or morph back into the "its gotta be genetic" mandate that ruled autism research funding over the past decades.

Look too for more "community" blogs with feel good stories about autism. Don't look for stories that describe the harsh realities of severe autistic disorder or the lives of so many persons with actual autistic disorders  spent dependent on the care of others.  Look for another generation of stories about Temple Grandin and the new wave of  DSM5 autistics like the John Elder Robisons, Ari Ne'emans, Alex Planks and other very high functioning persons featured by Autism Speaks and the mainstream media. 

Don't look for autism reality at the Huffington Post Autism Big News page any more. Look for autism nonsense, autism feel good fluff, just like most large media sites.

The Huffington Post Autism Big News Page ain't what it used to be.

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