What Court of Law Convicted Dr Andrew Wakefield of Fraud?


The "autism" news has been overwhelmed in the past 48 hours with news that Dr Andrew Wakefield committed fraud in conducting and publishing the MMR study which has since been retracted.  

I was aware that a medical society tribunal in the UK had found problems with the MMR study but I was unaware that a court of law, or governing medical society tribunal, had found Wakefield guilty of the serious offence of fraud.

If anyone knows which court of law,  or governing medical society tribunal,  found Dr. Wakefield guilty of fraud could you post a link to this site please?

Thank you.

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Autism Speaks & CDC Autism Prevalence Increase Workshop Timely: Autism is Rising & Environmental Factors Likely Involved



"Based on the above mentioned research, approximately 53% percent of the increase in autism prevalence over time may be explained by changes in diagnosis (26%), greater awareness (16%), and an increase in parental age (11%). While this research is beginning to help us understand the increase in autism prevalence, half of the increase is still unexplained and not due to better diagnosis, greater awareness, and social factors alone. Environmental factors, and their interactions with genetic susceptibilities, are likely contributors to increase in prevalence and are the subject of numerous research projects currently supported by Autism Speaks.

The increase in autism prevalence is real and the public health crisis is growing. More families are affected by autism today then ever before."

Autism Speaks Official Blog, October 22, 2010

The above statement by Autism Speaks was based on several published sources and CDC information. including articles by authors Bearman and King, who have indicated that approximately 50% (47%) of autism prevalence increases are based on factors other than social factors. Now Autism Speaks and the Centers for Disease Control and Prevention (CDC) are co-sponsoring a workshop  on February 1, 2011 to investigate the changes in autism prevalence over time in the United State:

"The purpose of this workshop is to identify promising directions, priorities, and needs for better understanding ASD prevalence trends. The workshop will include presentations on what has been done to understand reasons for ASD prevalence changes, examples of understanding prevalence change from other conditions, and panel breakout sessions to allow for further discussions.


This meeting is open to the public with pre-registration required by January 24, 2011 for US citizens and January 13 for non-US citizens."

Autism Speaks Official Blog, January 5, 2011

While Autism Speaks has been puzzling at times in its efforts to "speak" about autism disorders, promoting the careers of purported autism spokespersons who question the very existence of autism as a  medical  disorder,  the importance of the above initiative can not be overstated.  For far too long the "it's gotta be genetic" mindset has held sway and prevented substantial scientific exploration of possible environmental causes or triggers of autism. Hopefully the recent US Senate hearings, official statements by the IACC acknowledging the emergence of a gene environment interaction paradigm, the CHARGE study, work by Dr. Irva Hertz-Picciotto and UN Davis M.I.N.D. researchers,  and efforts like the Autism Speaks/CDC prevalence workshop will lead to further environmental autism research; research which should have been commenced  years ago.

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Autism and Aggression

I've begun my course , through correspondance / Distance Ed from the University of Manitoba called Introduction to Psychology and I've already stumbled upon some research that really interested me.... so much so that I completed the first assignment 2 days before the course began and 2 months before it was due.

The assignment was pretty simple. After the first two pages of practicing APA Citations, my eyes were starting to glaze over. But then we were to  choose a topic (I chose Aggression from the 3 options provided - addictions and eating disorders were the other 2), add a variable ( I chose Autism) and attempt to find Psychology Journals on this subject.

 I can't share the journals on my website since I only have free access to them via my student number but below are the citations for you to look up on your own , complete with page numbers. Our local library doesn't carry these journals but they should be fairly simple to find at bigger libraries or other sites online.

Matson, Johnny(2009) Aggression and Tantrums in Children with Autism: A Review of Behavioral
Treatments and Maintaining Variables. Journal of Mental Health Research in Intellectual Disabilities, 2, 169 — 187.
Torrance,Jonas(2003) Autism, Aggression, and Developing a Therapeutic Contract, American Journal of Dance Therapy, 25(2), fall 2003, 97- 109.
Anckarsater, H. (2006) Central nervous changes in social dysfunction: Autism, aggression, and psychopathy. Brain Research Bulletin 69(2006), 259- 265.
Christensen, T.J., Ringdahl, J.E., Bosch, J.J., Falcomata, T.S., Luke, J.R. & Andelman, M.S. (2009).  Constipation Associated with Self – Injurious and Aggressive Behavior Exhibited by a Child Diagnosed with Autism. Education and Treatment of Children 32 (1), 89 – 103. 

Anyway, the reason I wanted to post about this is because , amoung these journals, I found some really interesting research on what causes aggression in Autistic children and  some possible ways to minimize the tantrums etc that are often exhibited

This was absolutely FASCINATING to me because Avery goes through stages of mild to severe aggression and I can't always see the reason behind it. We try encouraging naps on these days (which is no easy feat with him) or having a more laid back day so that he isnt as over stimulated but sometimes I simply can't figure him out. With the added issue of limited communication skills (which, albeit are improving daily) it can be very frustrating when you can't "fix" the problem because you don't know what it is.

For example, Avery is going on his 3rd solid day of refusing to eat at meal time. It doesn't matter what we have , including his favorites (pizza, perogies, sandwiches) ... he will not eat. He is obviously hungry because he is trying to get in the cupboards to eat crackers or the fridge to eat yogurt at every opportunity (I've put a hold on snacks until he will eat at meal time.... so far) but he just will not sit down to eat with us.

Here is a description of our meal times ( this happens 3 times a day):
great effort is made just to get him to sit at the table, often resulting in Avery being very upset and crying or saying "NO!" repeatedly.

Then the meal is put infront of him and he will try to throw it off the table or he will  switch to a seat with no food infront of it (our table seats 6 so this is only possible if Jason or I havent sat down yet) or run down the hall away from the dining room.

If we can convince him to sit, we have had to spoon feed him which is met by pushing our hands away, kicking us, spitting at us or head butting (the boy weighs 40lbs and is very strong). At lunch time today I resorted to having one tutor hold his hands behind his chair while I forced his mouth open and spoon fed him and then gently put my hand over his mouth (so he wouldnt spit it out at me) until each bite was chewed and swallowed.
- This may sound extreme so I appologize if that offends you.-
we eventually got through his bowl of soup this way and he slowly started to open his mouth on his own (we praised him every time he swallowed with tickles, high fives and thank - yous) and he walked away with a full tummy.... I walked away completely exhausted.

My dilemma is this... is there an underlying reason for this behaviour that I just can't figure out?
is he overwhelmed or exhausted?
is he in pain or is there a physical reaction he gets from eating certain foods that I haven't noticed ?
or is he just not wanting to sit at the table with us because he sits for several hours a day during his tutoring?

these are all retorical questions obviously but if you have insight, go ahead and share.

I am going to continue researching this and report back with my findings.

Thank you for reading my ramble.

<3

Proud Daddy to Conor with Autism



Different people have different opinions about Facebook. I like it.  It is great for advocacy, in my case autism advocacy, and for connecting with family and friends, including friends I haven't seen in years.  There is also the occasional pleasant surprise, something I just didn't anticipate.  I received one of these nice little surprises recently when I was tagged with the above picture "proud daddy to someone with autism"  by AutismCreations.

 I am very proud of my son Conor.  He struggles with the challenges of his Autistic Disorder but he is a joy to be with and he has been liked by other children and youth wherever he has been, in grade school, middle school and now in high school.

We are buddies forever and I am very proud of Conor.

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Autism Society New Brunswick Meeting January 15, 2011



The Autism Society New Brunswick will be meeting Saturday, January 15 2011 beginning at 10 am at the Wu Centre, UNB Fredericton.  Everyone in NB affected by autism, whether you are autistic, have an autistic child, family member or friend is invited to attend.  The preschool autism intervention services now in place did not exist a decade ago. Teacher aides and resource teachers had not been trained at the UNB-CEL Autism Intervention Training Program. Individual learning environment accommodation did not exist to any extent. These services resulted from a  determined group of parents working through the Autism Society New Brunswick.  ASNB was unfunded by government and did not have paid staff.  We were conflict free and dedicated our energies toward making changes for the benefit of autistic children, youth and adults.  

More needs to be done.  Let's  get it done. Come to the ASNB meeting at the Wu Centre, UNB Fredericton on Saturday January 15 2011 beginning at 10 am and get started. 

See you there.

Harold L Doherty

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lbrb Blog Opposes Autism Causation Research? Why Now?


At the risk of encouraging visitors to head over to the lbrb site I feel compelled to question the  rationale for the site continuing to describe itself as being one about "autism news, science and opinion".  Frequent lbrb blogger Sullivan  states in a comment titled Upcoming IACC Subcommittee on Safety Conference Call – Wednesday, January 12, 2011 that:

"At present, much of the focus and the budget recommended by the IACC goes towards causation (with the majority of that of that going towards environment and gene-environment causation) and early childhood therapies."(Bold highlighting and underlining added for emphasis HLD.)

Sullivan appears to go on to suggest that services would be a more proper focus for autism funding. It is only now after more than a decade of  an almost exclusive concentration of funding of autism research dollars on genetic autism research that LBRB blogger Sullivan objects to autism research because the money should not be spent at all on causation?

Dr. Irva Hertz-Picciotto, who knows something about autism research as a lead autism researcher with the CHARGE study and with UC Davis M.I.N.D. Institute,  stated on the UC Davis web site in early 2009 that:

"Right now, about 10 to 20 times more research dollars are spent on studies of the genetic causes of autism than on environmental onesWe need to even out the funding."   -  (bold highlighting and underlining added for emphasis HLD)

Even NIH and IACC director Dr. Thomas Insel acknowledges that research dollars have flowed predominantly toward genetic focused autism research at the expense of environmental autism research:

"As with many complex disorders, causation is generally thought to involve some forms of genetic risk interacting with some forms of non-genetic environmental exposure. ... In addition, a number of other environmental factors are being explored through research because they are known or suspected to influence early development of the brain and nervous system. Recent studies suggest factors such as parental age, exposure to infections, toxins, and other biological agents may confer environmental risk. ... Progress in identifying environmental factors which increase autism risk has been made recently (Eskenazi et al., 2007; Palmer et al., 2006; Palmer, Blanchard,; Wood, 2009; Rauh et al., 2006; Roberts et al., 2007; Windham et al., 2006), although this area of research has received less scientific attention and far fewer research dollars than genetic risk factors"  (bold highlighting and underlining added for emphasis - HLD)

Sullivan and LeftBrainRightBrain now sense a move toward a balanced distribution of autism research funding dollars and object to causation research receiving funding at all?  

Why now? Do they really believe that parents who actually care about finding out what  happened to our children that resulted in these life limiting disorders are going to stop asking for autism causation research to be done? Do they really think it is unimportant to find out what causes these serious disabilities and try to prevent them from arising in future or finding treatments and cures for those who suffer from autism disorders today?  Are they concerned that environmental research will find external triggers and causes of autism that might undermine the neurodiversity ideology, the autism is just a beautiful, natural variation, a different way of thinking, nonsense that they have peddled to a gullible mainstream media and some ill informed members of the public since 2003? 

lbrb is abandoning the science component of their autism blog now that the "it's gotta be genetic" autism balloon is collapsing?  Curious, very curious. 

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Facing Autism in New Brunswick Thanks the Canadian Weblog Awards



Thank you to Canadian Weblog Awards for having nominated Facing Autism in New Brunswick for a 2010 CWA  and a big thank you to the jurors in two rounds of voting who selected Facing Autism as the First Place Winner in the Health & Wellness category and Third Place Winner in the Ecology & Social Justice category. I encourage readers to visit the CWA site and check out all the excellent winning and nominated blogs.

I also encourage our Canadian federal government to begin implementing a REAL National Autism Strategy.  The current National Autism Strategy is a very bad joke. Canadians with autism disorders and their families deserve much better than the patch work quilt of services that exists across Canada.  This is not a partisan issue. As yet no Canadian federal party has used the power of government to help autistic Canadians in any meaningful way. Canadians with autism disorders are Canadians too. They deserve recognition and real help from our federal government. 

I also encourage researchers, particularly in the United States, where most significant autism research is done, to continue efforts to finding causes, treatments and ... someday ... cures for autism disorders.  Autism is not just a different personality, a life style or a culture.  It is a medical disorder that restricts the lives of most affected by it.  I also encourage autism researchers in the US to contribute more funding towards environmentally focused autism research. Autism has not even remotely been explained by the total dedication of funding dollars towards genetic autism research.  The emerging paradigm recognizes autism as resulting from gene environment interaction. So it might be a very good idea to recognize the fine work done by Dr. Irva Hertz-Picciotto and her colleagues who have done so much to bring attention to the environmental side of the autism equation.

I encourage everyone .. researchers, doctors, government leaders, media "journalists", bloggers and citizens of all countries to recognize that autism is not just a childhood disorder, that autistic children grow up to become autistic adults. Many will require services in all areas of life including residential care and treatment which accommodates the challenges presented by their autism disorders.

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